The roller coaster ride continues! Parker was acting up again and desating pretty low this morning. So he got the work up again just to be sure he's not getting an infection. Feeds were stopped, labs drawn, PICC line and TPN started. So far no sign of infection. His blood count was pretty low today, so he got 1 transfusion and will be getting another tonight. Hopefully all he needs is a little boost of blood. His nasal cannula flow was turned up to 2L. Not sure about the plan for surgery. Waiting to hear what the surgeon wants to do. His ostomy output has slowed down. We will most likely keep the TPN going just to give him the extra nutrients he needs to fatten him up. John and I are keeping our heads up during these low points. We know how strong our little boy is. He won't let anything stop him!
