Day 33

Parker had an off day today. Blood gases were crappy in the afternoon so they went up on the vent settings. Then he was really unsettled in the late afternoon. Needed Ativan twice and still wouldn't chill out. He practically pulled his breathing tube out too. So frustrating! We tried everything to settle him. Then he finally relaxed before we left tonight and is resting well. It breaks my heart to see him upset. Hopefully he will rest well through the night. On the bright side his head ultrasound looked good. The bleed on the right is looking better and the ventricles are stable. They will continue to do weekly ultrasounds to follow up on the ventricles and monitor for any additional fluid build up. But so far we are looking stable.

Day 32

Parker did really well today. Vent settings down and he's tolerating it well. We will see when he will let us take him completely off the vent. He is up on his feedings now, 1cc every hour....woo-hoo! We will gradually increase it daily. His chest X-ray looked pretty good today too. He is such a good boy! And all the nurses comment on how good he is, and especially how cute he is! He's already the ladies man!

Day 31

Our little baby boy is 1 month old today! How time flies by! He had a pretty good day. The usual up and down on the oxygen. He was very content during the day, so he was able to get some sleep. We love when he sleeps because we know that means he is growing bigger. He is 2 lbs 15 oz! Almost 3 lbs buddy. Keep it up!!! I love this picture because he is always kicking his legs out of his snuggie. The nurse would tuck him in and he would kick himself free. I can only imagine how he would have been kicking me in my belly if he were still inside of me.

Day 30 6/2/12

No new changes with Parker. Not quite ready to be extubated yet. He had a pretty bad episode of his oxygen level going down. So bad that the nurse needed to give him some rescue breaths with the bag. So I am glad they did not take out his breathing tube yet. One step at a time! No rush. This little guy is a trooper though!

Day 29

Another good day. Down on the vent settings again. Talking about extubating soon. We'll see how his ABG's are tonight. A few more days with where his feed are at now and then we'll slowly advance his feedings. We like progression.

Day 28

I can't believe our sweet Parker has been with us for 4 weeks! What a four weeks it's been. He was quite restless this morning, so he got some Ativan to calm him and he slept like a baby all day! There were some pretty significant changes made down on the vent last night, and he did well throughout the day. No desats However his chest X-ray still shows some extra fluid on his lungs, so he got more Lasix. Feedings are going well. He will keep the continuous feeds at 0.5cc/hr for a few more days before we advance. He is progressing along, and we love it!

Day 27

Parker is doing well with his feedings in the new placement of his feeding tube. His ostomy continues to do well. Made some vent changes this afternoon, we'll see how well that works for him through the night. Praying for improvements.