Day 37

Parker is doing a little bit better today. Still having episodes of apnea, but he recovers from them more quickly and is needing less oxygen support than yesterday. Had a bunch of tests that aren't showing anything significant. His lungs are a little wet today so most likely will get Lasix. He was awake for John during his cares. Been giving this boy lots of pep talks. We've decided that his first word will be breathe because that is what we are always telling him to do.

Day 36

Today was one of those one step forward, two steps back days. Did his cpap trial again this am for 3 hours. Tolerated pretty well. But throughout the day he has been desating and having several apnea spells. So went up on the vent settings. Had a work up to rule out any infection. Stopped his feedings too. Just one of those days where you feel so good about making progress and then you hit a brick wall!!

Day 35

Good day today! Blood gases this am were perfect, so down on the vent settings. Today we tried cpap settings on the vent and he did great! No issues at all. They'll do it again tonight to see how he does, and maybe his tube will come out soon!! Up on his feeds again, 2cc/hr. He is doing so well! Making his doctor happy ;) and of course his parents happy too.

Day 34

What a better day today! Blood gases were good so his vent settings went down a bit. Up on his feeds, 1.5cc/hr. Very content today. He was awake and wide eyed for about 45 min. John and I just stood there and talked to him while he looked all around. He gave us a few little smiles too. Love when he's awake and wide eyed. He's at 3 lbs now too! Getting so big.

Day 33

Parker had an off day today. Blood gases were crappy in the afternoon so they went up on the vent settings. Then he was really unsettled in the late afternoon. Needed Ativan twice and still wouldn't chill out. He practically pulled his breathing tube out too. So frustrating! We tried everything to settle him. Then he finally relaxed before we left tonight and is resting well. It breaks my heart to see him upset. Hopefully he will rest well through the night. On the bright side his head ultrasound looked good. The bleed on the right is looking better and the ventricles are stable. They will continue to do weekly ultrasounds to follow up on the ventricles and monitor for any additional fluid build up. But so far we are looking stable.

Day 32

Parker did really well today. Vent settings down and he's tolerating it well. We will see when he will let us take him completely off the vent. He is up on his feedings now, 1cc every hour....woo-hoo! We will gradually increase it daily. His chest X-ray looked pretty good today too. He is such a good boy! And all the nurses comment on how good he is, and especially how cute he is! He's already the ladies man!

Day 31

Our little baby boy is 1 month old today! How time flies by! He had a pretty good day. The usual up and down on the oxygen. He was very content during the day, so he was able to get some sleep. We love when he sleeps because we know that means he is growing bigger. He is 2 lbs 15 oz! Almost 3 lbs buddy. Keep it up!!! I love this picture because he is always kicking his legs out of his snuggie. The nurse would tuck him in and he would kick himself free. I can only imagine how he would have been kicking me in my belly if he were still inside of me.