Day 47

Parker continues to have good days! Did amazing today. He did so well that I got to hold him again. He was so wide eyed when we started and was sound asleep a few minutes into holding him. Such a good boy. We learned that he loves being swaddled. We kept him swaddled after I held him and he was an angel all afternoon. We bumped up his feedings again to 7.5cc/hr. Decreased his vent setting again and since he was doing well on them we did a cpap trial. Unfortunately it was too much for him, so it was a no go. That's ok, we can try again. At least he doesn't desat like he used to. We're still headed in the right direction!

Day 46

Another good day for our little man. Only bad news is that the final result from the new breathing tube culture did come back with MRSA. Little disappointed, but he is doing well, not showing any symptoms and tomorrow is his last day of antibiotics. So as long as he is doing well, he's fine. Although we still have to isolate him and wear our pretty yellow gowns when we visit. Parker is doing well on his feedings and is up to 6.5cc/hr. his TPN has been discountinued and continues to do well on his vent with decreased settings! Best part about today was that I got to hold him again. It was only for about 45 min because his oxygen levels wouldn't stay up where they needed to be. But I will take any amount of time I can! Love that sweet little boy!

Day 45

Today Parker had his best day ever. Did so well throughout the day. He is down even more on his vent settings. Been doing so well with his breathing! Increased his feedings again to 5.5cc/hr. The best news was that his culture from his new breathing tube came back with no MRSA! Yay! Either it was just in the old tube, or the antibiotics killed it all. Either way, for now it's gone. I'm sure they'll culture again after his antibiotics are done. We are just excited that he has been doing so well the past few days.

Day 44

Parker did very well today! He is looking so much better. Very awake and alert today. A couple of episodes where he was fussy, but dad knows how to settle him really well. Slowly decreasing the vent settings. His chest X-ray is looking better too. Waiting on culture results about follow up MRSA. Increased his feeds to 4.5cc/hr. The best part of the day was that John got to hold Parker for the first time. Parker was fussy, so the nurse asked if I wanted to hold him and I said sure! Instead, I said John should since he hasn't had a turn yet. Happy Fathers day! Parker did so well! He fell right asleep in daddy's arms. Daddy even nodded off too! Love it!!

Day 43

Parker had a pretty good day today. Weight is still up, but he doesn't look as swollen as he did a few days ago. Slowly weaning him down on the vent settings. They changed out his breathing tube last night, that all went well. A few more days of antibiotics and we will see how his cultures turn out after that. Moved up on his feedings to 3.5cc/hr. He was so awake and alert for a while this evening. Love watching his eyes look all around. I always wonder what he's thinking. Probably something like, "I'm still in this box", or "when is this tube coming out of my throat". Keep on keepin' on Parker (that's what daddy tells him).

Day 42

Parker did really well today. Weight is a little bit down, so we know the Lasix is helping. Doing well on the vent. They are going to change out his ET tune tonight to see if that will help him get rid of the MRSA. His head ultrasound yesterday showed that the bleeds are reabsorbing and the ventricles are getting smaller. We like good news! His feedings are at 2.5cc/hr, the highest we've ever been at!!

Day 41

Parker did pretty well today, although his weight is way up. He's almost 4 pounds. I know that sounds good, but not when it's all fluid weight. His poor feet are puffy and he just looks like a marshmallow. So, more Lasix for our little man. Had a good chat with the doctor today. Parker will most likely be on the vent for a few more weeks. His poor lungs are still premature. We have a long road ahead of us! Our hopes are high and we know Parker can overcome anything.