Day 112

Parker pulled through his 3rd surgery with flying colors. He came up intubated, and he was fighting it. He was gagging and fussing. So they decided to extubate him and put him on high flow nasal cannula. He's been doing great on that. So much more chill without that tube in his throat. His incisions look great and his G tube is being vented so that his belly doesn't fill up with air. They will most likely start him on his feedings nice and slow tomorrow. Hopefully we can start getting stuff set up for home so that we can be home by the end of next week.

Day 111

Day 111

Parker had a really good day. We tried the bottle a few times with little success, so we gave him a break and gavaged. Tonight I have him a good bath settled him in his blankets and he took his full bottle. What a good boy. He does it when he wants to, and we can work with him at home on that. He is all set and ready for surgery tomorrow. His surgery is scheduled around 11am. We know he will do great! He is one tough kiddo. Surgery #3 here we come.

Day 110

Parker had a night of fighting his feeds and another day of fighting too. His reflux was so bad today that at one point that his heart rate and o2 sats dropped pretty low. So after much discussion John and I have decided to do surgery. They will do a fundo which will help his reflux and a G tube so that we can feed him when he doesn't drink all that he's supposed to. And the G tube will be a temporary thing. Once he is stable after surgery we can take him home and continue to work with him on his feeding skills. We feel this is the best move for Parker. We know he'll do so much better at home.

Parker had a pretty good day otherwise. we gave him some breaks from feeding and gavaged it. He was really happy this afternoon. He was cooing and making sweet happy noises. We did some tummy time so he could work on his head control. He does really well with that. Gets those legs kicking too. We love play time. But mama love snuggle time even more. We get a lot of that!!

Day 109

Had a good sleep over with Parker. He did really well waking up on his own and taking most of his bottles. Then the morning came and it was a fight to feed him. All day long he wouldn't take his full feed. Very frustrating. I don't know if it's because of the thickness of the formula makes it harder for him to suck, or if it's the rice that makes him fuller. So he had his NG tube placed back and we gavaged whatever he couldn't eat. I feel like we're running out of ideas for this kid. We had a pow wow with his doctor. We talked about the possibility of a G tube for his feedings if he continues to not drink all his milk. John and I already have discussed the possibility of a G tube, and we're fine with it. After discussing our feelings and thoughts with Parker's doctor we decided to set a deadline. We have given him a week. If he does not show progression then we will plan for a G tube. Mr Parker better show us what he's made of. Whatever happens we ate still proud of how well he has done and how much he has overcome!

Day 108

Big step today. We discontinued Parker's NG tube today. He gets to eat ad lib now which means he eats what he can when he wakes up, so he really does run the show now. This will give us an idea of how well he will do at home. So with that being said, we're having a sleep over tonight! I'm staying all night to see how well he does. I figure I better get used to feeding him all night. Wish us luck!

Day 107

Parker continues to show everyone that he wants to go home. He took mostly all of his bottles today. Only short on 2 feeds that we needed to gavage 18cc and 10cc. That's still a huge improvement from where we were at the beginning of the week. Hopefully he will continue to do well with his feedings and then we can pull his NG tube. He has been off his oxygen for 6 days now without any issues. We're so proud of our son. He has been doing an awesome job!

Day 106

Day 106

Another great day with bottle feeding! We now get to bottle feed him with very feeding!! So exciting. That means we're just that much closer to home. Hopefully he will continue to show everyone what he can do. It's like a light bulb went off in his head. I'm glad he gets it! I can't wait to get him home soon.