17 May @ 2032 Update

Amber update on 17 May @ 2032:

Day 14
Parker had a pretty good day today. Started him on a pain drip to manage his pain. He had a rough night last night with pain. All the doctors are saying he's doing well. Labs are all doing good. Just keeping an eye on his belly and letting it rest. So no milk for at least a week. He still gets nutrition through his PICC line. He's back on his phototherapy today. Still doing well on the vent. His oxygen levels still tend to drop every so often, so we have to increase the oxygen, and then he does too well do they decrease it again. I learned a new phrase, it called "chasing the vent". He is such a strong kid!!

16 May @ 1828 Update

Amber update on 16 May @ 1828:

Day 13
Poor Parker had a busy day today. New PICC line, adjusted his breathing tube and had a bag placed over his ostomy. He didn't get to be left alone till almost 5pm. But all things that needed to be done. On the bright side his ostomy put out quite a bit of stool. The surgeon was surprised it was already working. He tends to surprise all of us. Such a trooper. Hopefully he gets some good rest tonight

15 May @ 1805 Update

Amber's update on 15 May @ 1805:

Day 12
Another restful day for our little man. Abdominal X-ray this am showed that he has better gas patterns in the intestines and less swelling. Ostomy is draining just a tiny bit. Nurse said she heard some bowel sounds in his belly which is good. Nurse has been good about giving him pain meds before we do his cares (cares consist of temperature taking, diaper changing, suctioning, cleaning of the mouth, eyes, and cleaning the ostomy site). We have been very lucky with attentive and caring nurses and doctors.

14 May @ 1930 Update

Amber update on 14 May @ 1930:

Parker had a very restful day today. They did a repeat head ultrasound that didn't show any changes in his bleed. His abdominal X-ray tonight showed better gas patterns but some ascities and swelling which is expected. He is getting some more FFP to help out with his swelling. We know that Parker knows when we're there with him. Whenever we say goodbye he always raises his eyebrows and moves a little. Love that little man!

13 May @ 2200 Update

Amber's update on 13 May 2200:

Day 10 

What a day, what a day, what a day! Baby Parker sure did make up today for all of his good days he's had in the past. We came in this morning with an ok report. He had some more bile come out of his OG tube. Abdominal X-ray was taken and Dr said there was one area they were going to watch, ordered another X-ray for the late afternoon. When I changed his diaper at noon I noticed his stomach was bigger and more firm and more dusky looking. Afternoon x ray showed some concern so they took another shot from a different view. The dr came over to the bedside and said she wanted to show me the films, I knew it was bad. He had some free air in his abdomen and was going to have surgery tonight. Surprisingly John and I were calm about it and felt that things would be ok. The surgeon came in about 2 hours later and explained everything to us. Sending a child, especially a newborn preemie to surgery is one of the hardest things to do! But we put our faith in the Lord and in those doing the surgery. As John and I waited in the waiting room we felt comforted and at peace. Thankfully everything turned out ok. He had a spontaneous perforation at the most distal end of the ileum. That was our best case scenario. We were thankful it was not necrotizing entercolitis. Parker now has a tiny temporary ostomy. He is doing well and should sleep well through the night. We are so thankful for those caring for him. We are especially grateful for all of our family and friends who have been praying, fasting and supporting our family through these rough days. we will continue to keep everyone posted on his status.

Surgery

John update on 13 May @ 1900:

Parker's stomach has been looking a little dark for the past couple days. His stomach has been soft so doctors were not too concern but keep an eye on it. Today the stomach got a little hard and they did a few X-ray. They will be taking him into the OR to open him up and see what is going on. He received a blessing from Amber's dad and myself and we all feel it is going to be good. We have faith in the doctors and the staff working on him. Let God's will be done.

May 12 @ 2030 Update

Amber updated on May 12 @ 2030:

Day 9: Parker is now weighing in at 940 grams! He's passed his birth weight! Yay! Had a pretty good day. Belly looked a little big, had some bile coming out of his oral gastric tube, but X-rays look ok. More X-rays tonight and labs. Oxygen levels went down a few times, so I don't think he's ready quite yet to come off the vent. We're ok with that, he will be off in due time. He continues to pull through. This little man is a fighter!